This is only my sixth post and already I have met some wonderful ladies through their comments on SR. I think that warrants a little more personal information from me. An addendum to The Palsy.
I live in a little house just outside of Nashville, Tn with my husband and my two dogs. I can't drive so I spend the majority of my time at home. I'm not from Tennessee but I've come to appreciate the scenery and the peace and quiet that comes with living in a rural area. I'm not exactly the outdoorsy type. Scratch that, I'm not even close to the outdoorsy type. My idea of camping is only one bathroom and no computer. Two years ago this week our home was nearly destroyed by the 2010 flood aftermath aka the Army Corps of Engineers' genius plan. It has taken us this long to rebuild it with no shortage of amazing people stepping up to help - some of them from as far away as Liverpool, UK. We're not quite done with it but our involuntary remodel has resulted in a better, more accessible house than we started with.
My dogs have a big fenced-in yard to run around in and I walk with them for exercise. As I get older I've come to understand that any mobility I have is a privilege and it's use it or lose it time. Four years ago I had to have neurosurgery to repair a cervical vertebra that had literally turned onto it's side and left my right arm completely numb. It was likely the result of my efforts to become the world best Spastic Chef. Whatever; it was surgery or inevitable paralysis. As I've approached and passed the half century mark on this planet I've also had to work through a severely pulled hamstring, sciatica, and carpal tunnel - in my palsy hand of all places!
Poor me. Boo hoo. Nobody cares about any of that when they meet me. It's up to me to do the best I can to look as good as I can muster at any given moment so I can engage the people I'm interacting with. After my neck surgery I wore a scarf around my neck brace. It didn't occlude the brace, it just showed I cared enough to wrap it in something beautiful. Likewise until my neck healed I couldn't wear pants that had buttons or zippers so I found the prettiest skirts or pull-on pants I could and made sure the elastic didn't bunch and was covered up. It was the best I could do.
There are days when I don't feel like wearing much makeup or fussing over my clothes (yes, really) but I've set things up in such a way that even if I'm in a rush I know how to make myself look presentable. I'm sure all of you have seem the fashion makeover shows on TV. Don't you find it odd that they never makeover a Palsy? That's because their rules only take into account bodies that move correctly with clothes that fall over lines that are not twisted by spasticity or caught in the spokes of a wheelchair. Their bags won't sit in the crook of an elbow encased in a crutch, their stilettos are the ideal setup for a Spaz pratfall in 0.02 seconds.
So what are we, chopped liver?
The rules are different for us. I've figured out a few of them and I'll be sharing them here. It is my sincerest wish that all of you reading this won't hesitate to share your particular challenges and any workarounds you may have found. It's high time we showed the world what we're made of!